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August 30, 2012

Scientific Session and Patient Perspective Panel 3: Amye Leong, Healthy Motivation

Amye Leong shares her story of being diagnosed with rheumatoid arthritis at age 18 —and later with Sjögren's syndrome and osteoporosis — and her journey to become a patient advocate, speaker and author who defies disability. About her role as the international spokesperson for the Bone and Joint Decade, Leong says, "One of things I have been a strong advocate for is the engagement of patients at the research level. And that sounds really bizarre: "We're going to study you; we don't want to talk to you about your cells! But I would propose to you that when you engage us in the development of research design, we will open your eyes in ways that you will find very beneficial."

This page last reviewed on June 7, 2013

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